National Cystic Fibrosis Awareness Week Declared in U.S.
Cystic Fibrosis is an inherited disease which affects about 30,000 people in the U.S. and 60,000 worldwide. 2 genes for CF, one from each parent, must be inherited in order for a child to have CF. It is estimated that 1 in 30 (10 million) Americans are symptomless carriers of a gene for CF.
Why have an awareness week?
The National Cystic Fibrosis Awareness Committee (NCFAC), a volunteer organization with members nationwide and associates all over the world, believes that raising awareness of CF is crucial to the future of individuals with the disease. Increased knowledge and understanding of CF in schools, the workplace and social situations will greatly improve their quality of life. In addition, awareness brings about earlier diagnosis, which is imperative for optimal treatment.
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